What it’s Really Like to Have Type 1 Diabetes

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What is it like to live with Type 1 Diabetes??

It’s exhausting.

It’s pricking your fingers 4+ times a day.

It’s taking insulin every time you eat.

It’s giving yourself a shot 5+ times a day.

If you don’t give yourself shots, it’s having an insulin pump attached to you 24/7.

It’s people asking “what’s on your arm”

It’s the constant worry of your blood sugars.

“It’s being woken up countless times throughout the night to fix blood sugars that just won’t become stable”

It’s the endless headaches from high blood sugars.

It’s feeling numb, weak and your whole body is shaking because your blood sugar is low.

It’s having to explain that Type 1 and Type 2 are not the same without sounding irritated.

It’s finding the right endocrinologist.

“It’s not being able to eat whatever you want before carb counting and analyzing how it will affect your sugars later.”

It’s not being able to workout without worrying if you’ll go to low, drop too fast or even go high.

It’s being stared at by strangers.

It’s seeing all the scars from your site changes.

It’s people saying “are you allowed to have that?” 

“It’s remembering what it was like before being diagnosed and feeling nostalgic.”

It’s struggling financially because supplies are so expensive.

It’s thinking about all of the money you could have if it wasn’t for this disease.

It’s constantly wishing and hoping for a cure.

It’s watching someone turn their head at the sight of your needle.

It feels like a burden.

It’s worrying if you’ll wake up in the morning because you don’t know how your blood sugars will be as you sleep.

It’s that fear when you’re dropping too fast and you don’t have a source of sugar near you.

It’s eating anything and everything when a low blood sugar hits.

“It’s avoiding anyone who is sick because you don’t want to get sick and have to deal with high blood sugars.”

It’s having to leave class because your pump ran out of insulin.

It’s the possibility of ending up in the hospital over a cold.

It’s your pump tubing getting caught… all the time.

It’s people asking you “did you get a shot?”

It’s people telling you to check your blood sugar because you’re “moody”.

It’s going to the doctor every 3 months.

It’s getting blood drawn every 3 months.

It’s having to have medical insurance no matter what.

It’s having to have your supplies every time you leave the house.

It’s packing extra supplies when traveling.

It’s the fear that it’s too much for a loved one to handle.

It’s counting carbs.

It’s always having a purse with your supplies with you.

“It’s hating the word “disability” because it makes you feel less of a person.”

It’s being extra emotional from the high and low blood sugars.

You feel alone.

That nobody gets you, because nobody understands how you’re feeling and you can’t put it in words.

It’s not being able to eat whatever you want when you want.

“It’s not worse than cancer but this stays with you forever.

It’s not something I would ever wish on my worst enemy.”

It sucks. It is so hard. It’s exhausting and depressing.

I could go on and on. There’s more to it than just this post, what you read online or in a book. Unless you’re going through it personally, you don’t understand. 

I wish I didn’t have this incurable disease. Sometimes I want to give up, but I don’t. I know better than to give up. This is my life. Despite all the horrible things diabetes has brought me, over two years later, I’m losing weight and eating healthier. Because I have to.

Thank you lord for saving me. I could have died from a misdiagnoses. According to the doctor who diagnosed me, I should have been in a coma. 

See my story of my diagnoses and my journey here.

I will continue to fight for my life 24/7. Diabetes will not win.


All diabetics feel the same, see Victoria’s story here. Also, on the diabeticjourney.com there are many other diabetic’s stories of all kinds I you want to understand diabetes a little more.


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  1. Gloria Harvley

    November 6, 2017 at 7:11 pm

    Thank you for sharing something so personal. You are incredibly strong and brave. <3

  2. hal

    November 7, 2017 at 1:01 am

    what a great post – i love learning more personal things about people – stay strong

  3. La Shell

    November 7, 2017 at 1:12 am

    This is alot and you are so strong. Thank you for sharing something this personal. People like me who know very little about diabetes have gotten some insight.

  4. Prerna

    November 7, 2017 at 5:33 am

    You are so brave. It is so heartbreaking to know what a disease like diabetes can do to a person 🙁

  5. Chastity

    November 8, 2017 at 2:08 pm

    Thanks for educating me further on this I know someone with type 1. This will help me be more considerate and patience of their needs and wants. Planning on sharing this with her so she can read her story and check out your blog. Funny her name is Victoria as well, I thought for a quick moment if this was her blog. Thanks again 💋

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